well, we're home...
just wanted to update you a bit (yes, i'll try & keep it short(er) for those of you who've heard my ramblings before!)
we went today to riley for ruby's activation... it took about 3 or so hours, but she did great... they hooked her up & then started her hearing testing... i thought they'd turn her on & she'd start pointing at everything, jumping up & down, touching her ear, signing like mad, etc.)... NOTHING!!... she just sat there!!... UGH... i was almost in tears... 1 audiologist played games with her while the other worked on the puter (entering data that'd make the beeps loud or soft)... the 'game' audi would be playing away keeping ruby busy/occupied & the 'puter' audi would make it beep... ruby would just continue on what she was doing... i wanted to stand up & say, "girl, can't you hear that!!!!!!" (but i didn't)... puter audi would 'up' it a bit & again, ruby would just play, play play... she wasn't signing much (which's NOT like her), she wasn't vocal (which's NOT like her), she was acting so NOT interested (which's NOT like her if someone's paying attention to her & her alone)... i was getting down, to say the least... i couldn't imagine how she could go through this radical surgery & hear nothing!!... i made a comment about 3/4 of the way through, asking, "do you ever see these kind of results" (meaning the lack thereof) & they said, "oh my goodness, she's doing better than most!"... i'm thinking, "awwwww, those poor other 'space cadet children' - ugh"... by the end of the session i was wore out as i'd been watching this whole session through the lens of a video camera & every beep i heard, i'd tense up thinking, "she's gotta hear this one!"... we brought her home on program 1 (P1), then an hour later we raised the level to program 2 (P2), then another hour went by & it was raised again to program 3 (P3) & then last, but not least raised an hour later to program 4 (P4)... each level it was raised caused her to hear more sound... she's not acted any different at all, except for her doing this 'newborn babble' in the back seat on the way home from riley (ba ba ba ba pa pa pa pa ta ta ta ta, ka ka ka ka, etc.)... we're thinking maybe??? she was hearing herself!?!?!?...
we go back in the AM for them to check everything & get from our point of view what we noticed... that'll be easy - NOTHING!... i'm on a few yahoo groups for CI patients & posted my concern there & have gotten responses saying, "don't worry, because with children, it may take up to 5 weeks to see anything!!!" (boy, so different than MY plan!!)... anyway, i'm not down now & know that god sees the big picture & it's not always (almost never) in my timing, but it's always on time!... we'll post tomorrow when we get home... thanks for the prayers & keep 'em up!!
we went today to riley for ruby's activation... it took about 3 or so hours, but she did great... they hooked her up & then started her hearing testing... i thought they'd turn her on & she'd start pointing at everything, jumping up & down, touching her ear, signing like mad, etc.)... NOTHING!!... she just sat there!!... UGH... i was almost in tears... 1 audiologist played games with her while the other worked on the puter (entering data that'd make the beeps loud or soft)... the 'game' audi would be playing away keeping ruby busy/occupied & the 'puter' audi would make it beep... ruby would just continue on what she was doing... i wanted to stand up & say, "girl, can't you hear that!!!!!!" (but i didn't)... puter audi would 'up' it a bit & again, ruby would just play, play play... she wasn't signing much (which's NOT like her), she wasn't vocal (which's NOT like her), she was acting so NOT interested (which's NOT like her if someone's paying attention to her & her alone)... i was getting down, to say the least... i couldn't imagine how she could go through this radical surgery & hear nothing!!... i made a comment about 3/4 of the way through, asking, "do you ever see these kind of results" (meaning the lack thereof) & they said, "oh my goodness, she's doing better than most!"... i'm thinking, "awwwww, those poor other 'space cadet children' - ugh"... by the end of the session i was wore out as i'd been watching this whole session through the lens of a video camera & every beep i heard, i'd tense up thinking, "she's gotta hear this one!"... we brought her home on program 1 (P1), then an hour later we raised the level to program 2 (P2), then another hour went by & it was raised again to program 3 (P3) & then last, but not least raised an hour later to program 4 (P4)... each level it was raised caused her to hear more sound... she's not acted any different at all, except for her doing this 'newborn babble' in the back seat on the way home from riley (ba ba ba ba pa pa pa pa ta ta ta ta, ka ka ka ka, etc.)... we're thinking maybe??? she was hearing herself!?!?!?...
we go back in the AM for them to check everything & get from our point of view what we noticed... that'll be easy - NOTHING!... i'm on a few yahoo groups for CI patients & posted my concern there & have gotten responses saying, "don't worry, because with children, it may take up to 5 weeks to see anything!!!" (boy, so different than MY plan!!)... anyway, i'm not down now & know that god sees the big picture & it's not always (almost never) in my timing, but it's always on time!... we'll post tomorrow when we get home... thanks for the prayers & keep 'em up!!
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